Our girl is good. She
struggles through the trials and tribulations of another day but always manages
to slip in a few new items that make us smile or beam with pride. Today she took a few choice opportunities to
show off her ability to respond to some specific requests; a few when she sat
on the side of the bed and a few additional when she was being evaluated by an
external therapist. Today marked the 40th
day of our journey and it is the day that the pulmonologist finally threw in
the towel and told Donna that she won, she could have no bandage on her trach
as it completes its final healing. She
is a real tribute to commitment as she has been relentless in her removal of
anything that touches her neck.
The biggest battles that go on now involve insurance
companies and the location and timing of our next move with Donna. Once again Donna has made herself too healthy
to fit the criteria of this facility and needs to move on. Several options remain on the table and they
all involve a more rigorous therapy regime.
Sorry dear but you will soon long for the easy days of those Steve
Wonder music workouts with Bob.
40 days in bed and we are happy to say that her body is in
excellent physical condition. Much
effort and vigor has gone into that effort.
We intend to keep it so. We persevere through the challenges of fatigue, Donna’s
continuous care and holding people accountable.
I have to say that most every skill I have ever learned has been
applied. You should be happy to know
that my patience grows daily, albeit slowly.
I have come to believe our pace of personal improvement (Donna’s and
mine), are directly tied. I apologize to
her often of my limitations.
I understand that several have questioned whether the names
of our nurses really are Joy, Blessing, Grace and Mercy. This is true, they are. Amazingly we have a new nurse tonight, her
name is Eden. I promise I am not making
this up. Clearly God believes we are
slow on signs and is making it abundantly clear. Thank you Lord.
A few extra prayers appreciated as I face the challenges of
the insurance obstacles. We will
overcome.
Bob
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