I gave a pretty good update yesterday so I'll keep this short and sweet. I knew that if I mentioned our hospital change plans for next week with any level of confidence it would jinx them. No surprise uncertainty reentered the scene today and we are now not sure we are going or where. One thing is clear and that is we'll be here this weekend.
Donna had a rough 3rd day today rising way too sleepy as a result of the medicine change issues and managed to recover around 11 am as some of the medicine we wanted to stop because of side effects was restarted. The awake part worked for a few hours before the negatives showed again. After a rough few hours, the doctors and I agreed the medicine had to stop and a new plan formulated. Donna"s Doctor here, Dr Joseph, likes the conservative route and that usually works for me. We cut all sleep medicine tonight and the medicine messing with her head will stay stopped. This approach of minimum medicine is one I like so wish us luck. To ensure a better night sleep for Donna, I am staying with her tonight. Say some prayers for a good night sleep and a girl who is not too sleepy tomorrow. What's really interesting is that no matter how we mess up the medicine balance, Donna usually rebounds in the evening hours and is a joy to be around. This phenomenon gives us confidence this is a medicine problem as most of the medicines have run their course by evening.
Today, Donna's Speech therapist brought all the ingredients for one of Donna's favorite salads and they used their time to make and eat it. This happened in those few good hours around midday and Donna guided her well and then devoured the resulting salad. We agreed it sure tasted like home. This salad had goat cheese and as Donna was combining the ingredients, she made sure to get a good bit of the goat cheese on her fingers. Licking those was shear joy for her. This evening I had a hamburger and french fries and Donna had a merry time, eating some of the fries and dipping them in ketchup. These were great breaks from hospital food fare and give us great confidence that supplied with the right food, Donna once again will not have an appetite problem.
Much of the therapy focus is on making sure we are ready for the possibility of going home. The concept is a bit scary for the both of us. Donna because she realizes what she still can't do and me, as I fully understand the challenges of caring for her and getting her the help she needs. If this materializes soon, we'll be quick to take help. Hopefully all will work well for us in our next steps. More prayers!!
Tomorrow is Donna's new group excursion to the natural history museum. it should be fun for her. I haven't been invited and will use the time to wrap up some other things.
We're managing here as we hurl toward change. It's a bit scary but it is all based on positive Donna progress. We have a ways to go but always appreciate the comments of those that see her infrequently remarking on the change. She enjoys company on the weekends as it breaks up a slow time. Drop me a note if anyone wants to come. We can only take a few but a few are good.
Regards
Bob
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