Thursday, August 9, 2012

Thursday August 9

The source of  Donna's fatigue appears to not be medication but (duh) a lack of sleep.  Apparently she has taken on some of her brother Brian's habits and has become a night owl.  Thankfully she has avoided some of his other habits.  We'll know soon if it the fatigue is easily solved.  After sleeping till 10:45 am, she got into the therapy scene but kept trying to sleep.

Big news from today is that both she and I have had yellow arm bands added to our wrists.  These allow me to take Donna off the floor and to take her outside.  Clearly I have fooled these people with the appearance that I am a responsible person.  We took 3 trips out today and Donna seemed to enjoy herself.  It really breaks things up after therapy and before we want her to go to sleep.  Her strength continues to grow as she continues to battle with frustration, boredom and and improved orientation.   She still has an uncanny way of smiling, calling someone's name or saying goodbye with a wave that wins over hearts.  That's Donna.

Today during a brief visit from my parents, I told her that they had decided to stay for 2 years.  She scrunched up her face and stuck out her tongue.   She hadn't delved into the realm of humor to this point, so there was a pregnant pause as we all looked at each other.  Then with a little smile from her, we all knew that the humor was back.   I was quick to tell her it was a joke but, I believe it was unnecessary.  Her only comment was an unfiltered "Too long" and a smile.

All her sleep put her in a much better humor (whew...).  She yells at the pain of the therapy but really seems to understand the gain.  She knows she is getting better but as we were sitting outside under the trees this evening and I pointed out the window of her room, she said "Being here is torture".  I know we can all appreciate that.  It may be torture but it is awesome torture that leads to the end of the rainbow.

Onward
Bob


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