The most difficult day to date. Today Donna's frustration boiled over and sustained itself for the day. It was partially fatigue, a late night activity kept her up, but mostly it was her frustration with a desire to be better. Her doctor described it as a normal step and that it is not surprising to see great frustration at this stage. I don't think TIRR fully understood the the wrath of a an unhappy cajun woman. For me it was a full day of minute by minute patience and every day to this point was only preparation to perform today.
After discussion with her doctor we will be making some medication changes tomorrow, for the most part taking several away. The outcome is uncertain but by this time tomorrow we will know the answer. I'll just say what I have all along, I'll bet on Donna's brain over any medication anytime.
Amongst it all Donna's swallow test didn't perform to our desires. Her muscles are still not ready for the thin liquids but her therapist is going to upgrade her to better solid foods. We know what to practice and we are getting on with it. The test itself was amazing including a camera in which we could see her swallow from the inside. pretty cool.
As I was up with her last night, I'm off to sleep. Lets hope for a better day tomorrow. I need it.
Bob
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